The annual CTF NF Conference and Forum took place in Austin, Texas June 18-21, 2016. Over 250 researchers including many from England,...

Dr. Jennifer Brault recently joined the Vanderbilt Children’s Hospital and Vanderbilt’s Neurofibromatosis Clinic. She is originally from...

Pennie Brooks is a local NF advocate, activist, and organizer. She is a nurse who lives in Nashville and has a daughter with NF1. Q: What...

In any small community and even in some big ones, it is easy for patients with NF to feel that nobody in the community knows much about...

The following clinical trials and other NF-related trials can be found at ClinicalTrials.gov by searching “neurofibromatosis”. While some...

There are two major registries that are actively collecting information on NF patients: the CTF Patient Registry and the Washington...