Welcome to neurofibromatosis tennessee

Dear Friends of NF Tennessee,

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               We hope you are having a great Summer.  August always has a lot going on, but a special starting point is a big shout out and congratulations to Dr.  Eniko Pivnick and the NF Clinic that has coalesced in Memphis with a set of wide-ranging specialists. Dr Pivnick, a 2025 NF Tn Impact Award winner, and the entire Memphis NF Team are featured in the NF Network August Network News which is attached below. The great accomplishment has come about through years of hard work and dedication, and if you happen to be an NF patient in that area, or know someone there, then you know how much Dr. Pivnick means to that NF community. Congratulations!!!

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A Conversation with Dr. Pivnick as Le Bonheur's Clinic Expands to Serve the Entire NF Community - Neurofibromatosis Network

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Here is our list of the special NF-related happenings for August to join in on:

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August 19

NF Network: Research Webinar Series – Breaking Down Barriers to NF1 Care.

7:00 PM Central Time (Virtual)

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Dr.  Vanessa Merker from Mass. General Hospital and Dr.  Paul Moots of NF Tennessee will each be discussing clinical research options aimed at increasing opportunities and participation.

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Breaking Down Barriers to NF1 Care - Neurofibromatosis Network

 

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August 20, 3:00 – 4:00PM Eastern Time (virtual)

Children’s Tumor Foundation: NF Knowledge Webinar Series – Understanding Skin Tumors in NF

(note date and topic change)

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Dr.  Rebecca Brown, a neuro-oncologist and NF specialist at University of Alabama – Birmingham, will discuss the full spectrum of approaches used to treat cutaneous neurofibromas.

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NF Knowledge Series Webinar: Understanding Skin Tumors in NF - Children's Tumor Foundation

 

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August 22, 9:00 – Noon Central Time (Virtual)

Vanderbilt-Ingram Cancer Center NF Clinic, 9th Annual Neurofibromatosis and Schwannomatosis Patient and Family Symposium

Orgaized by Dr. Alex Mohler, VICC NF Clinic Director

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Neurofibromatosis (NF) and Schwannomatosis Patient and Family Symposium Tickets, Saturday, August 22  •  9 AM - 12 PM CDT | Eventbrite

 

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Please take advantage of these wonderful educational opportunities with some real NF experts, any of whom are from this region or have lots of connections here! And once again congratulations to Dr.  Pivnick and the entire NF Clinic team, and to the Memphis NF community for the NF program there that keeps on growing!!!

 

Paul Moots,

For NF Tennessee