Welcome to neurofibromatosis tennessee

April 13, 2025

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Dear Friends of NF Tennessee,

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Spring is really taking off! There are some some really cool events coming up, so here is a list with some added commentary:​

 

Bringing NF Research to You!

NF Research has been hit by major Federal Budget cuts as have so many other areas of research. From our Community Engagement Survey 90% of you feel that research opportunities here as strongly important. There are still some great opportunities to participate in NF research, even from home This was at the heart of the NF Network Webinar that I was able to be a part of, along with Dr. Vanessa Merker from the Harvard NF CLinic. If you did not get to see it, check out our recorded presentations at: 

 

 https://www.youtube.com/channel/UC8LlCmhsEfe-MryXPFQkqGw

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Applications are being accepted for teh NF Tennessee Laptop Giveaway and Indivisual Grants Program form now until May 10. 

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https://docs.google.com/forms/d/e/1FAIpQLScbknnqiZ9wVyQKq4putt-mWAyt16-mR-44h6os0x4bOOBviQ/viewform?vc=0&c=0&w=1&flr=0

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And this year we are teaming up the annual awards with a celebration of World NF Awareness Day, Saturday May 17, with our Annual NF Tennessee Picnic. Join all your NF friends at Edwin Warner Park, Shelter 3, Vaughn Road for a big BBQ from 11:30 AM until 3:00 PM. We'll bring the BBQ, you bring your famous homemade dessert for the dessert contest, your best singing voice, best stories and some extra smiles to pass around! There will be some new things too if we can catch enough of 'em for everyone. On top of all that, Skyler says the weather will be great!!!

 

https://www.eventbrite.com/e/annual-nf-tennessee-picnic-tickets-1315490370109?aff=oddtdtcreator

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Best Wishes for a great Spring!!!

Paul Moots, for NF Tennessee